Tag Archives: ulcerative colitis

Ulcerative Colitis: An (Often Misunderstood) Autoimmune Disease

August 23, 2014 Vicki Leave a comment

I was inspired to write this piece since my husband suffers from the disease himself and has additional disorders because of it. This is not a Christian article particularly (though it’s obvious from internet comments that Christians can be just as unsympathetic in their ignorance of the disease as anyone else), but one that many found useful at the now defunct Yahoo! Voices, where it had been published. It was my most viewed and used article, by far, there. So, instead of trying to republish it elsewhere, I’m posting it here. I hope you find it informative and of value to pass on! We hope that a cure may be found some day.

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UC is not a disease with localized symptoms only, as many believe

Ulcerative Colitis is not just ulcers in the colon due to stress or eating habits, as many people mistakenly believe. It is an autoimmune disease that is controlled through medication, if possible, and the removal of the colon if medications fail.

My husband has moderately severe ulcerative colitis (UC) and, despite being on medication, has frequent symptoms. Difficult for him, then, is his encounters with people who think this disease is no big deal or it can be self-cured. While some people with UC respond so favorably to medication that they remain in remission for very extended periods, for many this is not the case, and, there is no such thing as curing yourself of UC.

It seems hard to lead people to understand that UC is an autoimmune disease that has very little to do with controllable factors in a person’s life. About 500,000 people in the U.S. have UC, and about 50% of these have milder cases that respond well to medicines. The other 50% have more symptoms, have to go through difficult treatments, and may even have to have their colon removed.

The white areas are ulcers (image is from author's husband's colonoscopy). — The white areas are ulcers (image is from author’s husband’s colonoscopy).

What is Ulcerative Colitis?

Ulcerative colitis is a single disease, but it does vary significantly in its manifestation. It can be quite mild if found and treated early, or it can be deadly if not treated. The colon is an upside-down U-shaped organ, and UC can affect just the lower part of it (“proctitus”), the left side of it (“distal colitis”), or all of it (“pancolitis”). My husband has pancolitis, and no doubt this is partly due to a late diagnosis.

What happens with UC is that, for reasons currently unknown, the body attacks things in a person’s colon–and the colon itself–because it mistakenly views these things as infections. The colon becomes chronically inflamed, and this in turn further damages the colon. Left untreated the colon can become completely nonfunctional (called “toxic megacolon”), swell significantly, perforate, and cause death.

Ulcerative Colitis Symptoms

All of the symptoms listed below can range from mild to severe, and keep in mind that not everyone experiences all of these symptoms.

In children, a slowed growth rate
Abdominal pain and cramping; diarrhea
Blood and pus in stool
Weight loss; loss of appetite
Fever
Fatigue
Swelling and pain in joints
Nausea and vomiting
Lumps in skin that become ulcerated and then spread; mouth sores
Swelling of the iris of the eye

Complications from Ulcerative Colitis

Malnutrition, caused by malabsorption and/or medications
Bone loss and low bone density, caused by medications. (My husband had a foot break from only exerting normal pressure on it, and at a later point was found to have basically no vitamin D in his system.)
Anemia, and in some cases, massive internal bleeding
Colorectal cancer; cancer risk significantly increases each decade
Blood clots (especially in the legs, and clots formed there may travel to the lungs)
Kidney stones and liver abnormalities
Weight gain from certain medications, and emotional distress
Toxic megacolon, which leads to death if the colon is not removed

How is Ulcerative Colitis treated?

There are varying treatments, depending on the severity of the disease. They include proper nutrition relative to UC, prescribing “aminosalicylates” for mild to moderate UC, “immunosuppresents” for more severe levels of UC, and more difficult to handle drugs for emergencies or very nonresponsive cases. Please see Ulcerative Colitis: Medications for a detailed overview.

The ultimate treatment is the removal of the colon, or proctocolectomy. There are two different surgeries relating to proctocolectomy: the outcome of one is having an exterior bag that collect stool; the outcome of the more difficult procedure is that stool is expelled through the anus, made possible by a surgeon forming an interior “bag” from the small intestine. To read more about these procedures, see Removing the Colon: Surgical Options and Opportunities.

The CCFA: An Advocacy and Support Group

The CCFA, or Crohn’s and Colitis Foundation of America, is a nonprofit organization that funds research into inflammatory bowel diseases (IBDs) and publishes the scientific journal “Inflammatory Bowel Diseases.” The group not only has local chapters, but all kinds of information for coping with UC and other IBDs, research information (including clinical trials needing participants), leads to support groups and doctors, and an online community. If you want to find out more about UC and IBDs, or if you want to help find a cure through giving, the CCFA would be a great place to start.

Additional Sources

Ulcerative Colitis – PubMed Health/A.D.A.M. Encyclopedia

Survival and cause-specific mortality in ulcerative colitis: follow-up of a population-based cohort in Copenhagen County – NCBI/PubMed.gov

Christianity, disease, Health, health care

Varied and Odd Happenings; brains, kidneys, and the kitchen sink

May 14, 2014 Vicki Leave a comment

Hi wonderful readers. I’ve been neglecting my Christian posts of late but I’ll tell you of the odd happenings and other reasons why (besides my previous post regarding CafePress).

First, let me mention what has been unfortunately happening with my husband. My hubby has been ill all his life, and was finally diagnosed a while back with moderately-severe ulcerative colitis, an auto-immune disease. They try to keep it under control with a drug that is for milder cases, and it doesn’t really make him disease-free. So he has had those issues, but, something new came up. He passed out just before work one day – prior to that he was very fatigued and had other symptoms for some time, too, but he kept working (it’s hard to tell if some symptoms are from UC or from something else).

That was about four weeks ago and the doctors still don’t know what is wrong with him.

Though not too clear, this was the view of Catalina Island from my husbands first hospital room. Amazing. — Though not too clear, this was the view of Catalina Island from my husband’s first hospital room. Amazing.

They had done an MRI of his head and found that he has a large group of brain cysts that are very odd. They said at Kaiser that they had never seen anything like it (perhaps that’s because they don’t do as many tests on people as they should – seriously), but that those cysts would not be causing his symptoms. So they apparently will be testing him more to try and figure out what is going on (this had been a slow and agonizing process with Kaiser – another healthcare provider is recommended).

In the meantime, if you can believe this, he developed extreme pain where a kidney is and he went to the ER. They assumed the basic and normal thing – first time kidney stone victim. But, as he needed more pain medication than normal and his heart rate was elevated for a very long time, he was admitted to the hospital. I could write a whole long essay about his incident relative to our insurance, but right now I’ll ignore that. In the end, what they found was that he had a large “kidney stone” that isn’t a “stone” blocking the tube from kidney to bladder. He has stabilized but we’re waiting for the thing to come out to determine what it is, since it’s not made of calcium.

English: A kidney stone with associated hydron... — A kidney stone with associated hydronephrosis mid ureter (Photo credit: Wikipedia).

Otherwise, as we simply need more income, I’ve been trying to garner more freelance work and have been checking out the possibility of another part-time job (haven’t looked into temp agencies yet, but if you have opinions of any agencies I’d be interested to hear of your experiences). I’ve had two* assignments published at Yahoo! and am waiting–for what seems like an eternity, they are so slow–for other submissions to be accepted or rejected. So, the time I used to spend writing posts here, I’ve been investigating where I might publish, obtaining writing gigs, and writing articles/essays. One of my poems, one that is posted at this blog, is to be included in a Korean anthology of Christian poems.

I haven’t forgotten about this blog, however–no way. I had studied much for writing a nice post on the book of Jonah and how it relates to Christ and God’s plan for mankind, but got distracted and overly annoyed about an explanation I saw by Calvin regarding why/why not God “changed his mind” about destroying Nineveh. I thought it so absurd that I was preparing to write an essay about that only, but, I stopped myself (rage posts aren’t a good idea). I then lost interest in writing up the Jonah piece, but I do plan on getting that done sometime soon. It is one of my favorite prophetic sections in the Bible.

* I posted about my first one involving appendicitis, and if anyone is interested in my second one on preventing strokes, well, I’d be happy to know that you enjoyed it!

Update (May 18, 2014): My husband became extremely pained again and we went to urgent care. While kidney stones indeed cause a level of pain that is compared the child-birth, we just weren’t sure what to do. What is “normal” when dealing with kidney stones? Should you have to miss one to six weeks of work because of constant excruciating pain and/or nausea? We now know that a big part of my husbands health problems are related to becoming dehydrated, which is being caused by his ulcerative colitis. This was causing more problems with his kidney/kidney stones.

But to get to the point, he had surgery to remove the stone, which was found to be lodged in his ureter somehow. I wish I knew more – I was at the pharmacy when my husband woke up and the nurses told him about the unwelcome lodger. Regarding the weird non-calcification issue, the surgeon did speak to me briefly and said that the stone WAS calcified, so it is currently a mystery to us why were told differently earlier. Thanks for reading and any prayers; if you have questions, feel free to ask! We don’t mind, and maybe we’ll learn more from the question and in the effort to answer.